Friday, January 6, 2012

Wtf is thrombosis

I picked up my results and immediately read the report, for what was supposed to be a routine CT scan the results didn't look very routine!!!
I emailed my GP as I didn't quite understand what I was looking at, she then called me back and said she would call one of the consultants at the heptology department at sir Charles Gardner hospital and get clarification.
She called me back in about 20 mins and said the news wasn't good
Apparently the radiologist had already sent the results through to the department and the specialists had already huddled over the results
My main portal vein has a thrombus, as does the left and right portal veins, the left vein is stretched with partial occlusion, the left lobe of liver has an atrophic appearance suggesting cirrhosis and I have enlarged spleen.
Basically I think it means blood isn't getting to my liver for filtration and is backing up In my spleen
My GP said I should be expecting a call and to be prepared for some pretty major treatment/surgery
They are unsure if it's a chronic blockage (been there a long time) or something that has happened recently, but hopefully due to me being only 33 they are hopeful they can save the veins
So now for what was just a routine test I'm looking down the barrel of a gun, I have cancelled my gastro surgery again and lie in wait for what will be my biggest hurdle to date
I can look at this 2 ways, be devostated and stressed about whats happening and feel sorry for myself or be thankful I had thought about the gastro surgery and had the test done which picked up the blockages, otherwise it would never have been picked up until maybe it was too late, I choose the latter!
Yesterday I received a phone call from dr Jeffrey's receptionist saying I'm booked into see him on Wednesday arvo, not bad considering it's usually a 4-6 mth wait to see him, so now I'm just waiting to see what the go is!
It's now that I've decided to keep a blog about it all so one day I can reflect on it and also to share my story so my loved ones can walk this road with me without me having to explain everything to them
And on the off chance someone comes across this with Similar issues they know they are not alone
So I'll leave these lengthy posts here and report back on Wednesday when I have more of a clue what's going on!!

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